Wednesday, 20 July 2011

Blessed is she, with a little cross to bear

My family have not been genetically blessed when it comes to our health.  We come from a long line of unfortunate disease, and the heartache that follows.  I think of this only because I have noticed a trend recently in the scents I have chosen to fill my house with and how they remind me of someone very special. 
 

I always had a fondness for floral fragrances, there's no surprise to that really, since I adore my garden and spend much of the warmer months doing what I can to fill it with colourful and fragrant flowers.  The soaps, candles, perfumes and even cleaning products I have purchased recently though all are strongly rose scented.  The scent that reminds me most of my late, beautiful Nan, who sadly passed away from Motor Neuron Disease in 2007.
 
My Nan was a really Nanny, the kind that baked when she knew company were coming, who kept little toys in the house even when her grandchildren had all grown too old to play with them, who loved to teach us how to set the table just the way Pop liked and who loved a cream cake as much as the kids she baked them for.  My Nan was strong and proud, but in a way that was only portrayed in a loving way.  She is also one of the most generous people I have ever known, taking in my young cousin at the age of 12 months when his parents could not care for him on their own. 
 
Nan taught me the beauty of home made.  Whether it was clothing, table linen, pottery or a simple chocolate cake.  If you made it yourself you took a pride in it larger than any bought item could bring.  My grandparent's have lived in the same home since I can remember.  It has always been filled with photographs and treasured gifts they were given by family, as well beautiful wooden furniture my Pop made in his carpentry shed.  Sitting pride of place in their formal lounge was a large display cabinet made by Pop and filled with years worth of my Nan's collectible dinnerware.  Their house was filled with the smells of freshly baked bread, pies and cakes, or a simple bouquet of home grown roses.  And my sister, cousin and I would spend many afternoons sitting at the dining table drinking tea and eating cakes off of Nan's favourite cups and saucers.
 
My Pop cared for my Nan at home until the very last weeks of her life.  He rebuilt their living areas to fit her wheelchair and hoist, and would not hear of moving her into hospice care or the hospital.  Days before the inevitable move to the palliative ward our families gathered at their house for afternoon tea.  Though she could no longer speak, sitting in her armchair, hair and face made up by Pop the way she always liked it, my Nan greeted each of us with a smile.  As I painted her nails she slowly scribbled something on a piece of paper and handed it to my uncle.  She'd written "She's going to be a nurse, I'm so proud."  My uncle didn't hand me this note until we were leaving later that evening.
 
Nan's time in hospital was short.  We all gathered by her bed and watched her sleeping as my parents spoke to doctors and nurses about how long they thought she had.  My cousin, who they'd raised, was not yet here and we were scared that he'd miss saying goodbye.  As time passed we all started talking, like we would if we were anywhere else.  Sharing stories about what was happening in our lives, keeping our Pop entertained.  It must have been hours until my cousin got there, but Nan waited.  She waited until she heard all of us together chatting away.  Sitting in the armchair at the end of her bed, I watched her chest rise and fall, and that was it.  I couldn't catch my breath, I couldn't speak.  I knew noone else had noticed yet.  I reached for her hand trying to disguise my searching for her pulse with the blanket, but she was gone and now everyone knew it.

My Nan passed away one day before I graduated from my Bachelor of Nursing degree.  Her death made me question my decision about the career I'd chosen.  Even after starting my new job I couldn't convince myself I was the right kind of person to be caring for others.  I wasn't ready to see others suffer and struggle.  I wanted to be wrapped in my own grief for a while longer and not think about it.  My Mum saw me struggling through those first months, and came to me one evening after I'd come home from a shift where one of my youngest patients had passed away.  She reminded me of how fortunate we were that we were healthy, that people loved us, and when we are unwell we'll have eachother to care for us.  She reminded me how proud Nan would be to see that even though I was dealing with my own grief, I was helping someone else's family through theirs.  If it wasn't for those words, I would not still be a nurse.  If it wasn't for the encouragement of family and the memory of my beautiful Nan, I would not have the strength to do the job that I do every day.
 
Recently I have been considering this question again: do I still want to work in nursing, am I supposed to be focusing my life in another direction?  Today, overwhelmingly my Nanny has overtaken my thoughts.  She may not be here to give me advice, but I feel like the memories I have of her are guiding me nonetheless.  I want to hold onto that feeling of her being proud of me.  I do love what I do, even though it exhausts me.  I LOVE that I am helping someone the way I couldn't help her.
 
So, if you stop by our home and wonder why it starting to smell like a little old lady has moved in, it's because she has.  She's moved into me.  And as Hubby and I go through whatever our infertility fate throws at us I will try to remember that though we are not a genetically blessed family health-wise we are strong, and that too is in the blood.  
As my Nan would say, "Blessed is she, with a little cross to bear."  

  

Thursday, 14 July 2011

Feeling sorry for myself

Today I'm making a conscious effort to not feel sorry for myself.  This cycle's side effects suck!  I have been very near a trip to the local emergency room with dehydration, migraine and light sensitivity all day.  Hubby is stuck at work and can't get away any time before 5.30pm, and so I am here at home, still in my PJ's begging my body to cooperate.  I have peed three times in two days, I can't tolerate anything other than toast and cups of tea, and I'm living on codeine for the brain pain.

BUT, I have decided to flip open my laptop and check out my FB, which I haven't updated on because I've only had time to use my iPhone.  To my surprise we now have 74 Likers, and that doesn't include other pages!  They have shared their experiences with me about the joys of Clomid and other drugs, and how it's doing the same things to their bodies as it's doing to mine.  I'm not alone in my agony...Not even close to being alone.

So I'll grin and bear it, knowing I'm not the only woman in the world who feels awful today.  And say a big fat THANK YOU to every single one of you who tune in to hear me rant and rave.  Thank you for your support.  Thank you for your comfort.  Thank you for sharing!

I attached the video below because it was kindly shared with me today, of all days.  I can relate so strongly to every single one of those "What IF's".  And with the desire to help others who may feel anything like I do.  

So, PLEASE, if there's anything you ever wish to talk about, want to learn about, something I can research (I have access to medical journals/texts, etc. on a daily basis) for you, or if you'd like to share your story as one of my Guest Bloggers and feel the ever-growing love and support of those in your position, don't hesitate to contact me!  I mean it!  I will answer all emails as soon as I can!

YOU ARE NOT ALONE, YOU ARE LOVED AND SUPPORTED AND WE KNOW HOW YOU FEEL!    

What IF: a portrait of infertility

Thursday, 30 June 2011

This time in our lives

This morning, on the way out of the door after a long night shift at work, one of my closest friends pulled me in for a hug.  A real, warm, body squeezing hug.  The kind only family feel comfortable giving.  Such a small thing means so much at the moment.  

Now you may want to excuse me while I rant, complain and eventually philosophise for a while.  You see, things aren't as fabulous in the Sunny household at the moment as they would usually be.  We're pretty rock-solid kind of people, me and the Hubby.  It takes a fair bit to shake us and break our spirit.  I know this is because of our faith in the Lord and His plans for us.  But recently we have been shaken.  

I still find it amazing how quickly the idea of having babies takes over your life.  12 months ago we just wanted to know why we'd lost an unexpected pregnancy. Today, knowing that we can't have children without fertility treatments, our lives are planned around expected ovulation dates, doctors visits, medication cycles.  Sex isn't always the fun, spontaneous sex it used to be.  Somedays we just do it because we HAVE to!  And with our doc dumping our first FSH cycle to go on holidays instead, we've decided to self-medicate our way through one more round of Clomid (150mg days 3-7) and hope for the best!  But like every month before this, the Clomid is causing havoc in my system.  Blurred vision, migraines, insomnia and extreme sweating.  Physically my nerves are on edge and emotionally I'm a blubbering fool!  Poor Hubby!


Add into the mix the fact that neither of us can take holidays until next January, making it 13 months since our last time off together!  Hubby's job sucks!  Well, not his job, his boss.  Hubby works in the music industry and specialises in brass band and student musician instruments.  He LOVES this, always has and always will.  When he first got this job after we'd just gotten married, his boss promised him independence, educational opportunities to enhance his own managerial skills and music technique, and yearly wage negotiations.  And after over 18 months working there, he's yet to see any of these promises come to life.  Instead he spends his days on the telephone to angry suppliers who are waiting for payments from his boss.  His patience, credibility and love of the industry are fading quickly.  He hates going there every day and I hate seeing what it's doing to his confidence.  He's currently waiting to hear back from over five other jobs he's applied for.  Isn't more waiting just what we need?!?!

So it just kind of feels like one thing after another for us.  So much negativity!  So much bad news!  So many struggles all at once!  And yet, daily we tell each other something we know to be true,
 "No test or temptation that comes your way is beyond the course of what others have had to face. All you need to remember is that God will never let you down; he'll never let you be pushed past your limit; he'll always be there to help you come through it."
~ 1 Corinthians 10:13
(The Message translation)

And it's probably not the best idea for an already overly sensitive, hormonal wench such as myself to listen the likes of Adele at full volume on the way to work in the middle of the night, BUT I'm glad I did.  In her song "Someone like you" there's a beautiful phrase,
"Nothing compares, no worries or cares
Regrets and mistakes, they're memories made.
Who would have known how bittersweet this would taste." 

This got me thinking...  Some day we'll look back at this time in our lives and remember how much stronger it made us both as individuals.  How strongly it cemented us together as a couple.  How great our love for each other grew during the hardest of times, when it could have so easily thrown us apart.  How many of our family and friends rallied around us to help us feel comforted and never alone.  And how HUGE our hearts have grown because of all these things.  

Our children, when they eventually come into our lives, will be born into parents and family who have prayed for them for many years prior to their delivery.  Who love them more than life itself. And who will never let them feel anything less than loved, adored and COMPLETELY accepted by their parents.

Our struggle today will make us better parents tomorrow.  I promise that to myself and to my husband.  Our worries today will some day be gone or replaced or forgotten.  But these struggles will not be the thing that defines us, how much we stayed true to each other and God will.

So I wonder how Adele and God like their collaboration for my reflection?  Sometimes we might see something like a certain song on the radio at a certain time as just coincidence.  I prefer to think it's God handing me a lifeline. 
Love to you all, strength for your struggles and God Bless xx  





Thursday, 23 June 2011

Impatient me

Oh gosh, you would think after nine months that my ability to be patient would have increased, or at least because less frustrating! BUT it hasn't, not even a little bit!!

Today is cycle day 36 and I have been praying for maintenance week (AKA my period) for about 10 days.  But there's still no sight of it.  Hubby even suggested taking a pregnancy test to make sure we hadn't all been wrong and secretly popped an egg we didn't know about.  But that was negative, like always.  So we keep waiting, which is hard because we know that as soon as it's here our new course of treatment starts.  Argh, all this waiting is aging me scarily!!

Hubby's always keen to put a positive spin on our current situation, which is helpful until it's not!  Make sense?  Well, we both firmly believe that everything is part of God's plan for us.  And that the circumstances in our lives are here to help us learn something.  Hubby has always been adamant that God put us together to teach me patience, among other things.  I knew for a FACT that Hubby and I were supposed to be married after we'd been dating for about two years.  I didn't get why, after I told him this, he didn't agree.  We got engaged a little after 12 months later.  I then had to convince Hubby that living together briefly before we got married was a good idea.  We moved in together two months before our big day (and only because both our rent agreements were due for renewal).  After our wedding we discussed the perfect time to start a family.  I thought one year was long enough to wait, Hubby insisted on two.  

So you see, our whole relationship I've had to wait patiently for something that I wanted!  All big things, no doubt, but aren't they the hardest things to wait for?  And all this time (six years in September) Hubby has maintained the argument that his purpose in my life is to make me MORE patient!  And that this new episode in our lives is just another learning experience for just that.  

Well, I'm done learning, I'm tired of being patient!  I want what I want, and I want it NOW!! 

Wednesday, 15 June 2011

Registering as infertile

Sorry everyone, I realise it's been almost a week since I last blogged and since we went back to see our fertility specialist.  SO much has gone on in the Sunny household, I don't really know where to begin...

Hubby and I took our long list of questions back to the doc, armed with indifference about whether we would request a second opinion or new specialist.  More than anything, we just wanted answers!  I have NEVER been more nervous sitting in his waiting room than I was that day.  Hubby had to come over from work, so I sat there alone for about 20 minutes before the welcome smile of Hubby came through the front doors.  He could see how nervous and stressed I was so he took my hand and we just sat in silence.  We'd had weeks to go over the questions we wanted to ask, to talk about what we were comfortable with doing and not doing, and preparing for this day.  Our three cycle "trial" period on oral meds was officially over.  (I had been on a titrating Clomid dose ranging from 50mg to 150mg (days 3-7) for three cycles with no success.)

Our names were called, it was finally our turn to see the doctor.  We discussed further cycles with increased doses of Clomid, but due to my recurrent side effects (migraines, lack of sleep, cystic acne) we decided against it.  Instead we were introduced to the idea of Follicle Stimulating Hormone (FSH) injections and Intra-Uterine Insemination (IUI) with the possibility of In-Vitro Fertilisation (IVF).  Hubby and I sat there, staring at him for a minute, in shock.  Were we really up to this already?  

Our doc could sense our surprise and explained that the FSH would be administered daily from day 5, and I would be monitored with blood tests and scans every 5 days after commencement to make sure we produced the "right" amount of follicles.  The "right" amount was anything from 1-3 follicles, the "wrong" amount is anything higher than this.  If we had our magic number, I would then get a shot of HcG and we would proceed to IUI.  IUI is basically where your husband's semen is squirted directly into your uterus as close to your fallopian tubes as possible, in the hope that some of the sperm-meets-egg risks are alleviated.  IF we produced more follicles than desired (in excess of 10) we would be given the option to harvest these eggs for use in IVF when we wanted.  

We were given an information pack about Queensland Fertility Group and the services they provide, as well as our registration form.  WE ARE NOW OFFICIALLY INFERTILE!  Hubby was given orders to drop of his "specimen" to the collection office and we've had our bloods taken to test for all the nasties (HIV, Hepatitis, Rubella, etc).  Tomorrow we meet the QFG nurse and get educated on FSH injections, though this shouldn't be too big of a hurdle as I'm a nurse.  It's going to be fun watching Hubby learn this wonderful skill though, being the squeemish type.

The days following our appointment we found ourselves sitting on the couch together, staring into the distance.  Both of us wrapped up in thoughts about IUI, IVF, babies and so much more.  We've cried (A LOT) about the fact that our natural fertility options have failed, but through some excellent advice from great friends (and fellow infertiles) we've learned that this is all part of the process.  We have to give ourselves time to grieve our loss of fertility, work through our hesitations and to look forward.  This still may take some time, but together we can overcome this.  After all, it's the end result that matters, not how we get there!


So that's our news... Like I said, it's been a big week! 

Wednesday, 8 June 2011

Time for something new?

With this cycle very quickly coming to an end, with no ovulation in sight, we have spent the last week trying to decide what move we want to make next.  Hubby was quite at ease about the fact that we didn't have to see our specialist for over 50 days because he was so convinced that the meds were doing their job.  Now we know they haven't, we both kind of wish we'd had the chance to find out sooner through the routine scanning and testing we were used to.  Throughout all our decision making little events have popped up that have made us just that little bit more uneasy, but could have been so easily avoided.  

In trying to catch up with our specialist we were told that he'd call us "straight away" three days in a row, but we still have not heard from him.  Fed up with waiting I attempted to book myself in to see him at the soonest possible date, which turns out it was a month from now.  Keeping my cool I explained to the receptionist how important it was to see him in person as I hadn't been feeling very well and we'd be starting a new cycle soon.  Reluctantly, she fit me in for 15 minutes on Thursday afternoon, but only if I promised to bring a renewed referral with me from my GP.  (Had it really been 12 months since my PCOS diagnosis?)  I agreed, as I was desperate, and called my GP's office to make the request.

My GP is awesome!  He knows I'm a nurse and work stupid shift hours and as a result, he does his best to help me out.  Including usually writing me referrals and scripts over the phone for me to collect when I'm off work.  It's NEVER been a problem before.  But the receptionist I got this day wasn't having a bar of it!  She insisted that he wouldn't be able to help me over the phone and told me the soonest appointment was Friday afternoon, unless it was "important enough to miss work".  I took the appointment, adding before I hung up that I'd be speaking with my GP about her rudeness and inability to show compassion towards his patients.  She invited me to do so!

I HATE confrontation at the best of times, but two arguments with receptionists in one morning was more than I could handle.  And given the environment in which both these women work, you would ASSUME that they had the ability to empathise with certain delicate situations.  Boy, was I wrong!  So I don't and won't have my renewed referral on time, but I'm headed to my specialist anyway.  What are they going to do, turn me away at the door?  

I'm also armed with a list of questions a mile long.  Three cycles was supposed to be the "trial and error" phase of this medication and if it didn't show results we move on.  Well three cycles are up and we're no closer to producing eggs, so what next?  Can we rely on him to be able to fit us in for scanning when they're needed?  Can I expect to be called back when told he will?  How much longer do we stuff around with the same things because "I'm so young" and we have "so much time" to get this right?

We're ready for some new answers, and we're ready now.  If we don't get the answers we need/want, do we have the guts to ask for a second opinion or even a new specialist?  We'll soon find out!

Let you know what happens...

Monday, 6 June 2011

Eat Bake Nurture

 Eat Bake Nurture is my newest, most favourite homewares store online and I wanted to share with you some of their gorgeous supplies!

I am now the proud owner of both an 
Eco Cup 'Tea Lovers' and 'Graphic Edition' mug!  
These mugs are AMAZING!!  They keep your beverage hotter for longer, they come with silicone grips and lids so you don't burn yourself when on the run with your bevvy and they are too cute to boot!!





I've also got to trial a Kids Konserve reusable lunch wrapper, and can I just say what a clever idea these are!
I can take my sandwich to work every day and know it's wrapped tight and sealed with a velcro fastening.  
It's also great to use as a placemat when you forget a plate (which I do A LOT).  
Just wipe them clean and start again tomorrow!!  
(OH, and postage was literally overnight!!) 


 


Thank you SO MUCH Trish at Eat Bake Nurture.
I LOVE these! 
And I'll be telling ALL my friends!

Sunny xx